Hi! I saw that in 2012, you started wearing Kerasoft lenses. Can I ask if you still are wearing them and how they have been for you? I have fairly mild keratoconus and have been wearing glasses for several years now. I recently had corneal crosslinking done, and I would love to be able to wear soft contacts again. I'd love to hear a real person's experiences with the kerasoft lenses. Thanks so much!
(Answering this publicly in hopes of raising awareness about Keratoconus.)
Unfortunately for me, I have advanced KC and the Kerasoft lenses ended up gripping my corneas a little too tightly. The vision was great, but the tight fit quickly became uncomfortable and fairly irritating.
I’m now wearing the “Soft K Toric" lenses made by a company called Eni-Eye, and they’ve been incredible. After tolerating daily pain with RGP/hard lenses for years, I can’t tell you how happy I’ve been wearing these new lenses. And my vision has never been better: 20/20 in one eye, 20/15 in the other!
Both lens designs are very good at masking corneal irregularities. I’ve had both the C3-R and Intacs procedures done, and I was still able to achieve great vision with both Kerasoft and Soft K. Overall comfort was the main factor that determined which lenses I ultimately chose, and the Soft K lenses ended up being the winner for me.
However, if you have mild KC, Kerasoft might work well for you. It all comes down the specific shape of your corneas and the way your eyelids close around your eye. Your corneal specialist will definitely know which would be the better match for you.
Both Kerasoft and Soft K lenses can offer great, vibrant, comfortable vision, but they do still have the one flaw that all soft lenses share: they can dry out easily. Make sure to keep Refresh Plus vials on hand. :)
I really hope either the Kerasoft or Soft K lenses work for you. I know how frustrating it must be to deal with KC, and I’m honored to be a part of your support circle.
People say you have to have a lot of passion for what you’re doing, and it’s totally true. The reason is because it’s so hard that if you don’t, any rational person would give up.
It’s really hard. You have to do it over a sustained period of time. So, if you don’t love it, if you’re not having fun doing it, you don’t really love it, you’re going to give up.
And that’s what happens to most people, actually.
If you really look at the ones that ended up being “successful” in the eyes of society and the ones that didn’t, oftentimes it’s the ones [who] were successful loved what they did, so they could persevere when it got really tough.
And the ones that didn’t love it quit, because they’re sane, right? Who would want to put up with this stuff, if you don’t love it?
So, it’s a lot of hard work, and it’s a lot of worrying constantly, and if you don’t love it, you’re going to fail.